Sunday, August 19, 2012

Congratulations to the UAE on starting up their cancer registry again

I saw this in the news: Cancer registry new weapon in war against UAE's third biggest killer
http://www.thenational.ae/news/uae-news/health/cancer-registry-new-weapon-in-war-against-uaes-third-biggest-killer

The Ministry of Health is starting up a national cancer registry again, after a previous attempt in 1998 lost national coverage in 2001 (it still exists, just covers a smaller area). A quote from Dr. Anwar Al Hammadi explains why a national registry is so important:

"The ministry, HAAD and the DHA can work together to make this happen," he said. "There are so many forms of specialised treatment, including non-surgical measures.
"A registry would allow us to note the trend, track the patients and treat them accordingly. It's absolutely necessary."
Here in the US, we don't have a national registry. We have a National Program of Cancer Registries http://www.cdc.gov/cancer/npcr/, which supports local, state, and territory registries. You can go to their map and click on your state to be able to see cancer incidence data: http://apps.nccd.cdc.gov/dcpc_Programs/default.aspx?NPID=3
Here is the Nebraska page, just for example: http://apps.nccd.cdc.gov/dcpc_Programs/default.aspx?NPID=3&PID=167
We also have some population-based cancer registries that feed data to SEER: Surveillance Epidemiology and End Results http://seer.cancer.gov/registries/list.html . 
In case you want to know more about becoming a cancer registrar, or wonder what they do in their career: http://www.ncra-usa.org/i4a/pages/index.cfm?pageid=1
Other information on cancer registries - let me know if you find other sources:
Australasian Association of Cancer Registries (the association's link was down -I located this page covering information) http://www.spacetimeresearch.com/australasian-association-of-cancer-registries.html
CancerMondail (worldwide) http://www-dep.iarc.fr/
Global Initiative for Cancer Registry Development in Low- and Middle-Income Countries http://gicr.iarc.fr/index.php?page=home&lang=1&item_id=1
National Cancer Registry Programme (India) http://www.ncrpindia.org/Cancer_Atlas_India/index.aspx
North American Association of Central Cancer Registries http://www.naaccr.org/

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