Friday, September 07, 2012

Adenoid Cystic Carcinoma Research Foundation has updated its website

You can check out its new website here: http://www.accrf.org/
They have reorganized the patient information, arranged information specific to researchers, and generally improved the site overall. Please consider this wonderful organization in your estate planning or annual gift list - 100% of the monies donated go towards Adenoid Cystic Carcinoma research.

They also offer a link to the partner organization that has a ACC support message board: ACCOI http://accoi.org/ . Their list is a Yahoo Group - sign up and see if it offers you information or even just a place to make comments that others facing or having faced similar situations can support you and/or your family members. (If you are a free Yahoo email user as I am, watch it that Yahoo doesn't turn off your account if you don't check in every so often - I lost all my previous messages that way, and only now have been renewing my contact with the group.)

Thanks to both ACCRF and ACCOI for the work they do on behalf of ACC wearers like me. This ACC wearer appreciates all the fights you take on to keep information and research flowing!


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