It has been a while since I did a news post. Today I will add a few links to news items (anyone following this topic probably already knows most of the news items), along with a couple of links to search Twitter, since it is a good source of up-to-date news on this rare cancer.
Brave Like Gabe Running and Bike Trail has been named in Perham, MN. Named in memory of great athlete Gabe Grunewald, who died of Adenoid Cystic Carcinoma earlier this summer. I miss Gabe's strength and model example of how to continue living with this rare cancer, and wish her family and friends peace.
Drug development news: HLB's subsidiary LSK Biopharma has been awarded permssion for Phase 2 of rivoceranib. The trial isn't yet listed on the ClinicalTrials.gov site when searching for Adenoid Cystic Carcinoma trials - stay tuned.
Wired article on carbon ion therapy experienced by an Adenoid Cystic Carcinoma patient, which promises to be even more effective than proton radiation therapy. There are two trials listed as recruiting on the ClinicalTrials.gov site.
Search for latest #adenoidcysticcarcinoma on Twitter.
This is my place to relate my experiences with cancer treatment, as well as share resources that may be helpful to fellow oral, head, and neck cancer survivors. I was diagnosed with adenoid cystic carcinoma of the left parotid on June 30, 2006. My goal is to continue enjoying the Nebraska Good Life. I call this blog the "Cheeky Librarian", since the cancer was discovered in my cheek, I am a librarian, and many that know me say I fit the slang use of the word 'cheeky'.