We said goodbye this spring to another ACC wearer, Pat Shannon: https://www.ridinon.org/pats-final-ride. I had become friends with Pat on Twitter during his cross-country motorcycle trip. I appreciate how he faced ACC on his terms and will keep his model close by as I move forward on my path. Pat did more than live a life - he inspired others to keep an adventurous spirit even when dealing with cancer limitations.
This is my place to relate my experiences with cancer treatment, as well as share resources that may be helpful to fellow oral, head, and neck cancer survivors. I was diagnosed with adenoid cystic carcinoma of the left parotid on June 30, 2006. My goal is to continue enjoying the Nebraska Good Life. I call this blog the "Cheeky Librarian", since the cancer was discovered in my cheek, I am a librarian, and many that know me say I fit the slang use of the word 'cheeky'.
Friday, July 23, 2021
15 years on...
I am in the region of adenoid cystic carcinoma survival stats that I never thought I would - 15 years since original diagnosis and treatment. I also never thought I would be doing it during a pandemic, proving I can't foretell the future. According to anniversary sites, the 15th anniversary is crystal. As a lover of shiny things, I have purchased crystal drops and strong suction cups to hand out to friends and co-workers so they can have shiny plus rainbows in their spaces. I haven't connected the gifts to my anniversary - I don't want to alert the ACC that is lurking.
At 15 years, I don't have any new effects, still dealing with long-term radiation side-effects, neuropathy, headache, head's sensitivity to cold (skull insulates, after all, so my missing section is noticed). With COVID-19 taking up hospital and clinic attention, I have not gone in for any scans since 2019 (this also means I haven't had any effects to lead me to get scans.) I would say I have been happy for the lack of scan-dancing and test result anticipating, but that COVID-19 thing has filled every stress gap left by the lack of cancer scans.
The rest of my life: continue to teach future health professionals best methods to use when seeking information, promoted to professor on July 1, grandson nearly 1-year-old now, husband mending well after a bit of surgery of his own, grown children on their own, and living their own lives, made one post-vaccination trip to see my mom and planning one more before Delta or other variants overtake our surroundings. I have managed to stay in touch with friends during the distancing portion of the pandemic; now that we are heading into Delta territory, it looks like the distancing will continue. I am truly grateful for all my friends and family. Their support has made my survival a rich life, not merely surviving.
I've come full circle with revisiting your blog. Congrats on your 15-16 years! Cheers. -Fellow ACC survivor, Gerald (you wrote about me years ago)
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