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Friday, July 06, 2007

Announcing the arrival of taste

I don't want to get too excited, but I seem to be getting taste back. I tried a bit of tomato sauce, and it didn't burn. I tried a bite of an ice cream sandwich, and it wasn't waxy. Since I have a lot of bland things for me in the house, I am going to hit the HyVee for a couple of less-calorie items to try out, just to be sure. The ultimate test - my mom's fried chicken, which I might try the week of July 16 when I visit her. Still not much saliva, so I doubt that I will be lunching on paninis, croissants, or high-sugar items. But if any taste has returned, there will be watermelon on the table very soon!


Stephen P. said...

Hi, My name is Stephen Pruitt and I live in Nashville, TN. I also have adenoid cystic carcinoma. I received neutron radiation last year. I think we are a pretty rare bunch and I hope you are doing well. Would love to chat about disease and ways to maintain health.

Teresa Hartman said...

Thanks, Stephen, for your comment. I am sorry you are in this rare group, but glad you found my blog. I hope it is of help to you and your family. I am doing very well these days, enjoying the summer when I can. I have heard that Seattle is the place for ACC patients to go, since they have several radiation oncologists that often treat the disease.

Dr. Lisa said...

Teresa, I hope that the advent of taste is a real thing for you. That would be such a big step forward. Keep us updated.

Anonymous said...


My name is Ret and I also had ACC of the left parotid gland and mastoid area. I'm so happy to have found you! Following surgery and treatment in 2005, everything tasted terrible to me for a long while but now many things taste good and at worst, just bland. So there's hope! I have several questions about other side effects, but don't know if this is the right venue for asking them. By the way, this is the first blog I've visited and I have no web page.

Teresa Hartman said...

Thanks, Ret, and congratulations for coming through ACC and being on the other side. You might find the email discussions at the Rare Cancer Alliance and the Adenoid Cystic Carcinoma Organization International very helpful - the links are on the right sidebar of my blog, or in the Tuesday, July 24th post if you can't see the sidebar. Sign up and you will find many there that can answer your questions, as well as learn from your path.

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