Thursday, January 29, 2009

Met another Adenoid Cystic Carcinoma warrior today

The author of Korean Cuisine blog commented on my blog today, and I have added a link to her blog to this one. It would be wonderful if all of us ACC folks would be able to find each other as soon as we here the diagnosis, so maybe we would know more about what to do, where to go, what has worked well for others that we might borrow to use on our own path through treatment, recovery, and possible recurrences.
I still have the dream that we can charter a cruise ship, christen it the ACC Elite, and invite all the researchers to come to us. They can have their scientific meetings and clinical visits or whatever while we relax and sip on adult beverages, indulging in conversations with each other as we please. There would be a shaded deck for those of us that just went through head/neck radiation; foods sorted by texture and non-spiced, for those of us that have lost sense of taste (and the good stuff for the ones whose taste has come back!); and plenty of ways to make memories for a lifetime to crowd over the ones we would rather not have in the fronts of our heads.
Here's to all of us ACC warriors - may we always fight the good fight.

3 comments:

Molly Brawley said...

Hey Teresa!

I agree--your blog was helpful to me when I was diagnosed with ACC/breast and inspired me to write my own. I so appreciate learning anything that I can!

Molly

Korean Cuisine said...

I was so excited to meet a fellow ACC blogger I had to comment! =) I've joined all the online forums, but it's hard to find 'journeys' from start to present so your blog was a real eye opener and I thank you for that. I hope my blog doesn't offend anyone because I use my anonymity to cuss like a sailor and not be judged. =P

Jeanne said...

Teri--this is a great fantasy! All of you folks together at one time, plus a few doctors and researchers and maybe a cancer blogger or two (like me). What a great idea! Sail on.

Jeanne

 
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