Sunday, January 15, 2012

Adenoid Cystic Carcinoma in the news

The Cheeky Librarian here, letting you know the stories in the news or on the Internet about fellow ACC-wearers that I have located recently.

1. Christopher Lyles is back in the news with his new trachea:
http://abcnews.go.com/Health/Wellness/us-patient-artifical-trachea-transplant/story?id=15354809 

http://www.thestatecolumn.com/health/cancer-patient-pioneers-first-stem-cell-trachea-transplant/

2. Cancer.net has added or updated their existing topic page on ACC:
http://www.cancer.net/patient/Cancer+Types/Adenoid+Cystic+Carcinoma

3. I visited a site new to me - Cancer Forums http://www.cancerforums.net/
I can't tell who is producing this site, even after I registered for it. I located one person on there that said they had been diagnosed with ACC.

4. I got a metaphorical kick in the gut while searching for news on ACC - I located a blog that has stolen earlier posts that I wrote for the Cheeky Librarian blog. I am letting Google know and reporting to the home site that hosts the blog that stole my posts. After I get the word out officially, I will let you know the outcome. And if you have any advice, please let me know. I figure others have 'scraped' my blog for the information, and I don't take it as a compliment on the quality of my writing.

2012 and Adenoid Cystic Carcinoma still in my life

Omaha has been spoiled here with warmer than usual winter weather, but last week's weather reminded me that the cold is not ever far away. It was sub-zero wind chill two days when I left the house to go to work, and even with wrapping myself up and wearing a hat all day, the head pounded. I am glad the weekend did not involve leaving the house, and today was much warmer, so I should face Monday with less pain. It gets hard to concentrate, and since my head holds my greatest tool for work as a medical librarian, this is a coping issue.

I want to thank all of those who share their stories about having ACC and continuing their lives while facing the stress of living with cancer. I feel that we "get each other"whenever we email or comment, knowing without having to say it out loud what life is like now that we know we are mortal and are paying the bills that proved it to us. I have lost a few of the people that shared this change of perspective, and I really miss them. I value greatly the others that I email with - and just wanted to say thank you in public.

If anyone has some advice on how a person can keep on keeping on, I would eagerly share it here with others. Drop me a note, please.
 
Who links to my website?