Saturday, April 13, 2013

Adenoid Cystic Carcinoma in the news

I saw this article abstract reference - sharing here, since it may contain a useful literature review, and because it refers to ACC of the Bartholin's gland.
(Ask your local medical library or public library for full-text service - charges may apply.)

Report of two cases of adenoid cystic carcinoma of Bartholin's gland and review of literature
Taiwanese Journal of Obstetrics and Gynecology
Volume 52, Issue 1 , Pages 113-116, March 2013
http://www.tjog-online.com/article/S1028-4559(13)00022-3/abstract
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Great advice from a loved one of a fellow ACC wearer, on "How to deal when someone you love has been diagnosed with cancer" http://michelynntires.blogspot.com/2013/04/cancer-sucks-how-to-deal-when-someone.html . Wishing Michelle Lynn and her mom the very best!
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Tonight (I think) is a benefit for a fellow ACC wearer, Ken Dixon, drummer for the band Steppin Back (link to their Facebook page). Saw two different dates for the event. Hope they have more than one event, actually. If you are in Pennsylvania, or just watching from your computer, please cheer Mr. Dixon on, and wish him the best for me.
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A book for sale in March 2014 at Seven Stories Press: "Relatively indolent but relentless: a cancer treatment journal", by Matt Freedman. Sure hope it turns out to be a best seller!
http://catalog.sevenstories.com/products/relatively-indolent-but-relentless-a-cancer-treatment-journal
Text from the site:


Tender, tough, funny, and unbearably beautiful: 35 hand-drawn days in the life of not just any cancer victim--Matt Freedman, artist, dog lover, husband, American hero.

From October 3 to November 28, 2012, Matt Freedman underwent radiation and chemotherapy at Massachusetts General Hospital in Boston, Massachusetts, for treatment of Adenoid Cystic Carcinoma, a rare cancer that had spread from his tongue to his neck to his lungs by the time it was discovered. This is the journal he kept during that time, his 35-day course of treatment.

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A technical paper from FoundationOne mentions ACC: http://www.foundationone.com/objects/pdf/ONE-I-002-20130412_FoundationOne_Technical.pdf 
Description of what FoundationOne is, from their site: FoundationOne™ is the first pan-cancer, fully informative genomic profile designed to help oncologists expand their patients’ treatment options. 
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Lisa Hachey from Scarborough, Maine, and diagnosed with ACC back in 2001,  has been "paying it forward" as a Buddy for others traveling cancer treatment paths. Thank you, Ms. Hachey, for giving comfort and support at the time it is most needed!
http://leader.mainelymediallc.com/news/2013-04-12/Neighbors/Support_inspiration_shared_through_buddy.html 
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Book of poems, short stories, and art: Zombies for a Cure - originally published in October 2012, proceeds go to ACCRF! (found on Blaze McRob's Tales of Horror site - check it out if you are into that genre, looks like a great site!)
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A beautiful memorial in the blog, Glutton For Life: http://gluttonforlife.com/2013/04/12/in_memoriam
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