Sunday, July 07, 2013

Adenoid Cystic Carcinoma fundraisers

Nebraska
View out of a Log Cabin
 window in
 Toadstool Geologic Park,
Nebraska
Speaking of fundraising - I have located a few, and will post more if you send them to me. Glad to get coverage to either research this rare critter of a disease, or to assist others with paying for their personal medical treatment.

A recent Facebook site that has rocketed to nearly 300 likes in a very short time: One Team, One Fight https://www.facebook.com/jeffdameron16 . You don't have to have Facebook to see the site, I think - should be an open one, but if you are on Facebook, consider 'liking' the page to catch updates as they happen. From the site: "This page is setup to keep friends and family updated on Jeff Dameron's progress and fundraising events in the community." I received permission to mention this site from Jeff's sister, the site's creator and a key member of Jeff's great support team, who added, "The more people praying and sending up good thoughts, the better." Sending you all good things through the interwebs, Jeff, as you progress along a path many of us have shared.

Dingleballs - not sure what that entails, but it looks like a lot of fun and it is the key for a fundraiser coming up next weekend in Fall River, Wi in memory of Erin Melin: https://www.facebook.com/pages/Annual-Dingleballs-Tournament-in-remembrance-of-Erin-Melin/283573628243. This will be the last fundraiser, so don't miss it! Erin Melin died in January 2006 of ACC. Her wonderful supporters have held this fundraiser since, and donated the proceeds to charities supporting other ACC fighters/patients/wearers. This ACC wearer thanks them for all their hard work, and can't wait to hear how the fundraiser went out with a bang!

An individual fundraiser that I missed looks to be still taking donations through PayPal. I am mentioning this here, since the person is one of my personal heroes on this ACC trek that I find myself on: Alicia Almanza http://www.heartsunitedforalicia.com/HU4A_Home_Page.html . Alicia has been a great supporter of raising money for ACC research over the years, so it is only right that her supporters include fundraising for her as her bills have increased. Take a look at "Leedy's Story" to see how one individual has faced this "indolent" cancer over the decades. Thank you for sharing your story, Alicia. I hope the event in May was everything you and your supporters hoped for, and thank you for all you have done to further research on our cancer.

The Adenoid Cystic Carcinoma Research Foundation (ACCRF) has a site where you can set up a fundraiser to support ACC research: http://www.accrf.org/take-action/special-events/. Remember that this entire foundation was created by an ACC fighter/patient/wearer and her wonderful husband - never overlook the power of an individual, folks! I think setting up a fundraising page would be a wonderful thing to hold in addition to a birthday. I am also considering this for my own memorial (yep, sorry to say, but none of us live forever) - what a wonderful tribute, and better than flowers!

Let me know if you hear of other Adenoid Cystic Carcinoma fundraisers, either personal or to support research. I would be honored to promote them here.


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