Saturday, September 08, 2007

Adenoid cystic carcinoma in the news again

Family fights rare form of cancer:,cancer-907.article
I found 17 in Nebraska with my kind of cancer, which can have a primary location of any secretory areas on the body. The national cancer statistics don't list where the cancer starts, so I don't know if anyone in Nebraska with ACC is 'cheeky' like me or not.
The family started an organization to raise funds to help further research on this cancer:
Attack ACC The funds raised will be sent to the University of Virginia The University also maintains an ACC tumor registry, but I haven't quite figured out how the process works to send my tissue samples (for example, are they still around in the hospital somewhere??).
The Attack ACC site has a good description of the progress of ACC on this page Knowing that this might be my progress (but also knowing everyone is different) is what keeps me focused on getting things done in the next 5 years or so, but the sooner the better.

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