If you or someone you know has recently been diagnosed with adenoid cystic carcinoma, you are probably searching for information on this type of cancer, and what treatments may be available for the individual's diagnosis. Please don't feel like you have to locate the information by yourself - there are legions of information professionals ready to take on that mission for you. Call a librarian! Contact your local public library for help - searching for information at times of stress may not lead to the best sources that exist. (I am a librarian, and I didn't search out my own information - I asked the librarians at Nebraska's Consumer Health Information Resource Service for help http://www.unmc.edu/library/consumer/ ). You can find a local library in Canada, United States, or other countries - either public or medical - that serves consumers searching for health information by looking at MedlinePlus: http://www.nlm.nih.gov/medlineplus/libraries.html .
You could also look in MedlinePlus for local sources of help and information, by using the Go Local feature. For example: look at the Go Local box on the right side of the Cancer topic page in MedlinePlus http://www.nlm.nih.gov/medlineplus/cancer.html . Click on the drop-down menu, and select your state or area (not all states are in the database yet, but folks are working on it!). I select Nebraska. A page comes up, showing the state with county boundaries - I select Douglas, and can see a list of resources (including health professionals, facilities, and support groups) in Douglas County, regional services also serving Douglas County, and resources serving all of Nebraska.
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It is kind of you to offer help to those with this rare cancer. I would also suggest they subscribe to a free email Information Group where people with ACC share information and support. That would be at:
http://health.groups.yahoo.com/group/Adenoid_Cystic_Carcinoma_Organization/
They also might want to visit the Adenoid Cystic Carcinoma Organization International website at:
http://www.accoi.org/
and read the comments from some of the members of the Information Group. There is also a lot of good information on ACC there. Thank you for providing help to others with ACC.
Teri -
thanks for your post on my blog about not tasting things, and drinking just milk and water.
I have friends who live in eastern Ohio, and at one of their houses, the water was just like at your grandmother's - sulphur smell! Next time my taste buds make everything weird, I'll have to try holding my nose and see if it helps!
I hope that your taste buds wake up again soon, and that your recovery continues to go well. I was happy to read your post, a while ago, that you are finally without pain after a few years of having that not be the case.
Take care, and be well.
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