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Wednesday, January 26, 2011

Adenoid Cystic Carcinoma in the news

From Portsmouth, NH - Samuel Hyun, a math teacher, passed away due to ACC on January 16. He was 34. More on his story can be read here: Teacher Inspired Students

Diagnostic Imaging has an article from a Penn State resident on ACC of the breast:
I am not sure if Diagnostic Imaging is a peer -reviewed site or not (more about the author who is also the blog owner? here ), but I do take issue with these sentences in the article: "ACC has an excellent prognosis with few reports of metastatic disease. It is a slow growing lesion with a low recurrence rate. Long term survival rates are high." (They cite this article for that  'fact': Leeming R, Jenkins M, Mendelsohn G. Adenoid cystic carcinoma of the breast.Archives of Surgery.1992; 127:233-235.) While I wish the author all the best in their educational career, I urgently request that they learn more about ACC before they become a fully trained physician. Please. Speaking as one that wears this disease (different site, of course, hence the name "cheeky"), I would like a better definition of what 'excellent prognosis with few reports of metastatic disease' means exactly to health care professionals. (Possibly the author meant to say "ACC of the breast"?) Because I personally know of way too many ACC humans dealing with 'metastatic disease' .

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