Time to act is now. I saw this story at NPR:
Patients find each other online to jump-start medical research
http://www.npr.org/blogs/health/2012/05/28/153706146/patients-find-each-other-online-to-jump-start-medical-research?ps=sh_sthdl
Has there been an ACC virtual patient registry and I missed it? Slept through it? Quick - tell me where I can sign up!
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