Monday, June 17, 2013

Adenoid Cystic Carcinoma patient is seeking information on clinical trials

I happened across this during a search for ACC on the web:
Technology wanted: Seeking clinical trials for treatments of Adenoid Cystic Carcinoma
-a Canadian is offering $2500 for accepted lead
https://www.ideaconnection.com/tech-wanted/adenoid-cystic-carcinoma.html

I haven't thought of seeking clinical trials this way - I would have gone to a medical library (the ones in Canada are wonderful!) and asked them to search for me. Getting a crowdsourced-search going isn't a bad thing, though, which is why I am mentioning it on this blog. The IdeaConnection post goes on to say:

NOTE: The client is already aware of the trials being performed by Snjezana Zaja-Milatovic at the University of Virginia, and the Axitinib trial being performed at the Memorial Sloan-Kettering Cancer Center. 

Cheeky Librarian again - A basic method of searching for clinical trials - If you go to the link on the right side of my blog and click on Search ClinicalTrials.gov for ACC, you will find 96 trials that include the words adenoid cystic carcinoma. Click the box next to show only open studies, and you will see 22 studies listed. Take that list to your care team, and see if you are a candidate for any of them. 

Another site, CenterWatch, has a page for Head and Neck Cancer - I will add that link to the resource listing on the right side of this blog:
http://www.centerwatch.com/clinical-trials/listings/condition/161/head-and-neck-cancer 

Wishing the best for the person seeking the information. And if you know of another clinical trial, please sign up at that IdeaConnection site, and maybe your lead will get you the $2500. 

Added information - NIH has a free volunteer registry you may want to sign up for, called ResearchMatch. You can sign up through a link towards the bottom of this NIH page: http://www.nih.gov/health/clinicaltrials/findingatrial.htm . It appears to be limited to the United States, but worth checking out. 

I located this Canadian site for clinical trials: http://canadatrials.com/ , but they say they aren't affiliated with Health Canada. So I went to Health Canada, and located this site for their clinical trials lists: http://www.hc-sc.gc.ca/dhp-mps/prodpharma/databasdonclin/index-eng.php . I will add the second site to the research links collection on the right side of this blog.


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