The ACC Research Foundation has published a new FAQ that may be useful if you or someone you know is newly diagnosed with Adenoid Cystic Carcinoma:
http://accrf.org/html/faq.php
Take a look at it and see if it helps answer some of your questions. This page is the result of at least three volunteers that worked together to get it up: Dan Dube', Kara Gelb, and myself. We are currently working on getting a reputable table of statistics on this rare cancer - stay tuned!
Also, feel free to send me a comment through this blog, if I can be of assistance as a patient that has experienced one form of Adenoid Cystic Carcinoma and its treatment. None of us are total experts on this disease - sadly, not even health professionals - but if enough of us communicate, we just might get a handle on it. (The comments sent through this blog end up in my email box before being published, in case you wonder where yours went after you sent it.)
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