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Sunday, November 02, 2008

Adenoid Cystic Carcinoma on Facebook

I should have known that folks with ACC (or people caring about others that have ACC) would be on Facebook. I ran a search for adenoid cystic, and found two groups:
I Support "Wild Bill" Allen's Fight Against Cancer
Help Fight A.C.C. (Adenoid Cystic Carcinoma)
I don't currently have a My Space, or Second Life account - if someone does, let me know if they have ACC groups on those sites as well. Just maybe, we can all get together virtually someday. The discussion groups and forums on the right side of this blog do a great job in linking people together - give them a try, if you are searching for fellow ACC fighters. You can also post here, and we can gather our own group together right here on this blog. Whatever the result, if you or someone you love is fighting this rare cancer, please know you are not alone!


Jeanne said...

Teri--good for you for trying to find others with your rare cancer. As you've told me, it's tough when you may NEVER meet another person who has the same kind of cancer that you have.

I have the opposite problem: With breast cancer, I'm surrounded by others who have or have had the disease--the next door neighbor, my aunt, the list goes on and on ...

But Teri, is Nov. 2 your most recent post? Is there something going on, because I hate to see you not blogging? Let me know.

Much love,


Strum for Christ said...


I googled "Adenoid Cystic Carcinoma" and found your blog. I too have ACC, it's of the breast and am learning more about this type of cancer and connecting with others. I too have started a blog in an effort to share with others. I hope you don't mind, but I would like to add your blog link on my site. I too see that you've not posted in a while, I hope all is going ok for you.


Teresa Hartman said...

Hi Cindy - glad you found this blog, and I hope the information and links are useful to you. Sorry we have to meet in this fashion, but I am glad we get to! I am posting a bit more regular - lost my way a bit this past fall after a particularly active scan dance session. I will link to your blog - thanks! -Teri

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