I treasure all comments I receive, and have a special file for the ones that get emailed to me. I requested and was granted permission by the author of the comment below to post it on the blog. I have asked Ms. Kroc if she would like to write a post in the future for those of us facing ACC for the first time - stay tuned!-th
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Hi Teresa,
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Hi Teresa,
I was sent a link to your blog by one of the folks we've treated for ACC - and I have to tell you WOW! I'm so glad you're out there writing, collecting information, and helping people get connected. As you point out, ACC is a rare enough disease that it can be difficult for people who have it to find each other or find resources.
I am the medical social worker with NIU's Institute for Neutron Therapy at Fermilab in Batavia, Illinois (http://www.neutrontherapy.niu.edu/neutrontherapy/ ). A large percentage of the people we treat have ACC or other head and neck cancers. I'll be pleased to let the folks we treat know about your blog; people come to us for neutron radiation from across the nation, and occasionally internationally, and then return home when their treatment is completed. It can be hard to be away from home, in addition to the inherent stresses of a cancer diagnosis, and it would be a comfort to make connections with other people facing the same questions and issues.
Thank you for the research and writing that you do. It's a good work.
Warmly,
Jennifer
Jennifer Kroc, MSW
Medical Social Worker
NIU Institute for Neutron Therapy at Fermilab
4 comments:
Hey, Teri. Isn't it nice to get praise like this? Well-deserved praise, too, and from someone who can send other folks with ACC in your direction.
That phantom hand you feel is me, giving you a virtual pat on the back. And a hug! Good job.
Jeanne
Hard evidence that you are changing the world! I'm so proud of you for doing this work. Whit
And, Teri, you deserve any word of that! As you know, I prefer it when I hear about you and how you're doing, but I know that you take great pleasure in sharing what you find out about your disease with others. So, while I don't comment when you post about ACC, I do skim through it and can really appreciate the service you're providing to others! Thanks for sharing that comment!
I meant "you deserve every word", not "any word". I think I was tired when I wrote that ...
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