Story mentions Adenoid Cystic Carcinoma in the March 10th Wall Street Journal: Push to Cure Rare Diseases
http://online.wsj.com/article/SB10001424052748704145904575111943356541152.html?mod=WSJ_latestheadlines
Says the Orphan Drug Act provides incentives for drug companies to work towards treating orphan diseases. Glad to hear there is movement, but I was saddened to be reminded that I (and many others) wear what is termed an "orphan disease". Here's to drug companies going for the tax breaks and developing that therapy for this thing. I know too many people that are in their second or third time of fighting ACC, and they really need a break.
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What's sadder is that it takes a federal law to encourage drug companies to develop the drugs in the first place! It's like the American Indian Religious Freedom Act (1978?) designed to allow Native Americans to practice their religions (maybe even using peyote) in a country that is supposedly founded on religious freedom. Ironic
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